*Please note that the Swedish Fundraising Control's calculations of the Swedish Childhood Cancer Foundation’s income reached a slightly higher amount than shown above. The reason is that the calculation model includes interest income and similar income items from the Swedish Childhood Cancer Foundation’s long-term security holdings.
Three missions help to eradicate childhood cancer
The vision of the Swedish Childhood Cancer Foundation is to eradicate childhood cancer; more research is needed for us to reach our goal. Alongside the key research mission, the Swedish Childhood Cancer Foundation also aids families of children with cancer through its advice and support mission. In order for the Swedish Childhood Cancer Foundation to continue to finance research and support families of children with cancer, our third mission, information, is crucial. It raises awareness of and concern for our issues.
Research and training
The Swedish Childhood Cancer Foundation is the single largest financier of childhood cancer research in Sweden, and also provides financial support for development of new treatment methods and continuing education in the field of childhood cancer.
This year’s investments, amounting to SEK 238 million, were allocated for purposes such as:
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Sweden’s first research initiative focused on brain stem glioma – specifically, the highly aggressive brain tumour, pontine glioma. This is one kind of childhood cancer for which there is no cure. The first Swedish child is now included in a pan-European research project that hopefully will save lives. Read more about pontine glioma research at Barncancerfonden.se.
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Development of the National Paediatric Tumour Biobank at Karolinska University Hospital, a unique project that collects tissues from solid tumours with the goal of linking the tissue material with clinical patient information through the Childhood Cancer Registry. This process will make it possible to conduct research that includes information about both treatment and tumour. Read more about the National Paediatric Tumour Biobank at Barncancerfonden.se
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Funding of 4,263 hours of continuing education in childhood cancer for nurses, as well as 1,792 hours for training of 64 doctors specializing in paediatric oncology.
Advice and support
The Swedish Childhood Cancer Foundation provides advice and support activities to assist families of children with cancer in various ways. For example, we offer families opportunities for recreation and rehabilitation, and work to ensure that families get the support they need and to which they are entitled.
This year’s investments, amounting to SEK 37 million, were allocated for purposes such as:
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Stronger focus on specialist nurses. Every paediatric oncology centre has nurses who specialize in fields such as brain tumour diseases or other types of childhood cancer. Read more about specialist nurses here.
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6.5 sibling support coordinator positions. Sibling support coordinators can be found at every paediatric oncology centre and at Lilla Erstagården (paediatric hospice). Read about sibling support coordinators here.
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Camps and stays. The majority of stays during the year were held at Ågrenska competence centre and 200 youngsters participated in the giant youth camp, “Camp Happy”. In addition, 35 youngsters had the opportunity to travel to Barretstown, Ireland, where camps are arranged for children and young people who are currently or were previously under treatment for cancer, as well as for their siblings. Read more about camps and stays here.
Information
The Swedish Childhood Cancer Foundation was founded over 35 years ago with the goals of spreading information about cancers in children and teens and shaping public opinion. This is still a primary focus, which also includes initiatives to boost knowledge and awareness.
This year’s investments, amounting to SEK 52 million, were allocated for purposes such as:
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Focus on opinion formation in both owned and earned media, which helps to raise awareness of and concern for our issues. With nearly 5,000 articles and media postings during the year, awareness of childhood cancer diseases is higher than ever.
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The Swedish Childhood Cancer Foundation publishes a series of editorial publications annually such as the Barn&Cancer magazine, the Maxa Livet (Get the most out of life) magazine for young childhood cancer survivors and the comprehensive Childhood Cancer Report. In addition, the Swedish Childhood Cancer Foundation provides a variety of information activities that help raise awareness about children who suffer from cancer.
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Film production in connection with events such as the Childhood Cancer Gala and the Swedish Humour Prize, which help to enhance our fundraising activities and boost knowledge and awareness of childhood cancer.
We ensure that your donation is used where it is needed most
The Swedish Childhood Cancer Foundation has been assigned a ‘90 account’ by the Swedish Fundraising Control. One of the main requirements to obtain such an account is that not less than 75 per cent of the organisation’s total income must be spent on mission-related initiatives. In addition, administration and fundraising expenses may not exceed 25 per cent. In 2016 the Swedish Childhood Cancer Foundation allocated 86 per cent of funds to mission-related initiatives and 14 per cent went to administrative expenses and bolstered fundraising activities.
The Swedish Childhood Cancer Foundation also belongs to the Swedish Fundraising Council (FRII) and is therefore required to publish an annual quality code report. Apart from matters encompassed by the FRII quality code, we work with additional documents to regulate the operations and ensure that your donation is used where it is needed most. These include a staff manual, special job descriptions, authorisation procedures and a number of mission-critical policies and guidelines.
Quality-assured research process
A systematic, meticulous approach subject to external review is crucial to ensure an independent and qualitative research funding process. The Swedish Childhood Cancer Foundation constantly reviews its procedures and guidelines to actively avoid conflicts of interest and to ensure that we fund the right research projects.
På svenska
The Swedish Childhood Cancer Foundation complies with the Swedish Fundraising Council’s (FRII) quality code for fundraising organisations. The purpose of the code is to increase transparency and openness in the sector, thereby strengthening confidence in organisations that comply with the code.